Thank you

Discussion in 'Chit Chat & Introductions' started by jamiesmack, Feb 8, 2016.

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  1. jamiesmack

    jamiesmack Active Member

    Mar 31, 2015
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    Hi everyone. I'm sorry I haven't really been on much to thank you all, but havent really been online too much. Heads been a bit over the place.

    I just wanted to thank you all for your generosity, kind words and offers of support. I knew you were all a top bunch of lads before this happened, and this has backed it up 100%.

    As you've all been so kind, I feel you deserve some sort of explanation as to what happened, so here goes! When my son Alfie was 6 weeks old we had a visit from his health visitor to let us know that a routine blood test had picked up some issues and we were sent off to the hospital for more tests, where it was confirmed to us that Alfie had something called congenital muscular dystrophy. CMD is a degenerative muscle wasting disease, where his muscles were at there strongest when he was born, and would only weaken from there. As you can imagine that absolutely floored us as a family as we worried so much for our future. The amazing thing was that over the next few years Alfie kicked CMD's ****! he managed to sit upright (with help from his specialised chair), use a power wheelchair at the age of two (the youngest in Wales apparently) and basically defied all odds. On top of that he was an amazing little kid. So bright and funny. In April last year Alfie started mainstream school, despite all professionals saying that he should be in a special school. He absolutely thrived, being placed in a class two years above his age group.

    Alfie's condition has meant that he was always very susceptible to illness, and even the slightest cold meant he needed hospitalisation because of his weak lungs. Before christmas Alfie picked up another cold, and as was usual my wife and I sat up with him all night, monitoring his condition. All of a sudden his oxygen alarm went off and we knew it was time to call an ambulance. This took 35 minutes to arrive, during which time Alfie had stopped breathing on his bedroom floor. The ambulance whisked him and my wife to intensive care, getting his heart going again on the way. We spent the week before christmas at Stoke intensive care in a state of panic, ive never felt anything like that before, it was surreal. As the week went on, his condition deteriorated, and an MRI scan showed significant brain damage had occurred when he stopped breathing. He started to have seizures and the doctors discussed with us the option of removing his ventilator etc.

    At 5pm on Christmas evening the nurses put him on my wifes knee, they removed all the ventilator etc and I held them both until he fell asleep.

    It was the hardest thing Ive ever done but we are sure it was the right thing to do for him.

    I'm sorry for the huge rambling post, once I'd started I couldnt stop! I dont think Ive ever said all of that to anyone before, so I think it might help in a wierd way.

    By the way, my customers have all been great so far, I've spoken to them all at least twice, letting them know whats going on and so far I've had no problems. If i lose any over this then they weren't worth having in the first place. I'm going to do a few small jobs this week just to ease myself back into it. My friend has a flat in Brixham, Devon that he is allowing us to use next week, so we are going to go for a spin down there before starting back to work again.

    Anyway, as I said before thank you all so much. IMG_2902.JPG IMG_2905.JPG
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  2. Alex87

    Alex87 Active Member

    Oct 16, 2015
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    Thoughts are with you and your family
  3. Alien Human


    Mar 15, 2015
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    That's one of the most powerful things I've ever read - my heart goes out to you & your family brother.

    Although not religious but I'll certainly be saying a prayer for Alfie.
  4. Green Pro Clean Ltd


    Jan 20, 2015
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    I just don't have the words.
  5. Jamesndc

    Jamesndc Member

    Nov 22, 2015
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    You are an inspiration my friend!

    Sent from my iPhone using Window Cleaning Forums mobile app
  6. Gav

    Gav Grand Master

    Dec 18, 2010
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    He is such a cute lad Jamie.
    I will get the donations to you soon.
    Thanks for sharing that little glimpse. Don't really know what to say apart from take care of each other.

    One last push anyone who has not donated! ;)
  7. daveyboy

    daveyboy Legend

    Jul 10, 2014
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    As Darren said i don't have the words to know what to say mate
    As i said before my thoughts are with you bud
  8. Eviestevie

    Eviestevie Grand Master

    Jan 17, 2015
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    I Carnt express in words how sorry I am for you and your family

    I have children and Carnt imagine what you have had to go through

    When my daughter was 5 week old she was rushed into hospital with suspected meningitis and had unusual blood results
    The pain and fear I experienced for The 5 week was the hardest most painful thing I've ever experienced

    I hope you and your family are all ok and you remember all the good times and how happy he was

    He looks it in the pics

    Sorry if the words aren't quite right but I'm not very good at writing things

    But if you need anything or want to pm me please feel free
  9. simon

    simon Guru

    Jan 18, 2012
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    what a beautiful little lad, my thoughts are with you and your family
  10. Reach For The Glass

    Reach For The Glass Well-Known Member

    Sep 19, 2015
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    I'm so sorry to hear that mate i have little ones and cannot even begin to imagine your pain.

    Hope your Mrs is ok. Suppose only advice I would give is continue to speak and talk to each other. Don't ever avoid speaking about it as hard as it may be. Your an exceptional person airing something so personal on a forum of strangers.

    Best of luck to you all.